Series: WCG Patient Forum

Founder of DNPs of Color Offers Collaboration to Nursing Academics of Minority Background

New Study for Policy Makers Documents the Burden of the Diagnostic Odyssey on Rare Disease Families

Nell Choi [Rare Artist 2022]

Nine Year-old Nell Choi’s Hospitalization, Her Book, Her Family, and Her Legislative Advocacy

A Couple’s perspective on their careers in clinical research while living with Parkinson’s Disease

Parents of a child with a serious disorder speak about family, community, and advocacy

Years of Patient Community Empowerment Contribute to Historic Rare Disease Drug Approval

A Historic First Drug Approval Based on a Model

Repurposing Already Approved Medications is Saving Lives

Miranda Walker [Rare Artist 2022]