WCG Patient Forum 2023
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Citizen Science: Community Engagement in Health Research
Videos
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Founder of DNPs of Color Offers Collaboration to Nursing Academics of Minority Background
Videos
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New Study for Policy Makers Documents the Burden of the Diagnostic Odyssey on Rare Disease Families
Videos
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Nell Choi [Rare Artist 2022]
Videos
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Nine Year-old Nell Choi’s Hospitalization, Her Book, Her Family, and Her Legislative Advocacy
Videos
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A Couple’s perspective on their careers in clinical research while living with Parkinson’s Disease
Videos
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Parents of a child with a serious disorder speak about family, community, and advocacy
Videos
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Years of Patient Community Empowerment Contribute to Historic Rare Disease Drug Approval
Videos
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A Historic First Drug Approval Based on a Model
Videos
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