WCG Patient Forum 2020
CenterWatch | Insights
Julia Jenkins, EveryLife Foundation for Rare Diseases: Patient’s Shape Science-Driven Public Policy
Podcasts
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Mark Dant, Pushing for Research that Saved his Son’s Life in the Fight Against MPS I and Advocating for Change
Podcasts
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Dr. Emil Kakkis: Developing Novel Treatments for Rare Disorders and Connecting With Patients as Critical Partners in Research
Podcasts
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Sarah Tompkins, on having Ehlers-Danlos Syndrome, having a mis-understood disease, taking a lead in advocacy
Podcasts
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Sarah Zentack, Leslie Urdaneta: Ensuring Genetic Counseling is Incorporated Into the Patient Experience
Podcasts
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Amanda Moore: An Inside look at Angelman Syndrome
Podcasts
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Karmen Trzupek, MS, CGC, Director of Ocular & Rare Disease Genetic Services: The Role & Importance of Genetic Counselors to Patients
Podcasts
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