Insights
CenterWatch | Insights
Mark Dant, Pushing for Research that Saved his Son’s Life in the Fight Against MPS I and Advocating for Change
Podcasts
CenterWatch | Insights
Dr. Emil Kakkis: Developing Novel Treatments for Rare Disorders and Connecting With Patients as Critical Partners in Research
Podcasts
CenterWatch | Insights
Sarah Tompkins, on having Ehlers-Danlos Syndrome, having a mis-understood disease, taking a lead in advocacy
Podcasts
CenterWatch | Insights
Sarah Zentack, Leslie Urdaneta: Ensuring Genetic Counseling is Incorporated Into the Patient Experience
Podcasts
CenterWatch | Insights
Amanda Moore: An Inside look at Angelman Syndrome
Podcasts
CenterWatch | Insights
Karmen Trzupek, MS, CGC, Director of Ocular & Rare Disease Genetic Services: The Role & Importance of Genetic Counselors to Patients
Podcasts
CenterWatch | Insights
Kristin Smedley of the Curing Retinal Blindness Foundation: Learning How to See Differently
Podcasts
CenterWatch | Insights